Jan. 6th, 2016

alexpgp: (Visa)
I perceive myself to be in the fight of my life right now.

I use this rather odd "perceive" construction, which sounds like it was glommed from a story by Conan Doyle, because in distinction from a situation—say, a fire—where the threat is immediate, direct, and obvious to the senses, my cancer has (knock wood) not yet announced its presence, except through the mechanism of medical diagnosis and therapy—that, and doctors of all stripe persistently asking how I'm managing my pain (to which I am fortunate enough to answer, for now, "I'm not experiencing any pain").

That said, I suppose one could step back and observe that everyone is, every day and to one degree or another, in the fight of their lives. It's just people in my condition are more aware of the fact, to a greater or lesser extent.

This is something of a generalization of an epiphany I experienced while trying to "put aside" a particularly persistent maudlin question, variations of which have been bullying their way into my consciousness all too often over the past month or so.

Said question announces itself with the words "What if this is the last time I'm..."—followed by some activity, such as "celebrating a birthday?" or "putting up a Christmas tree?" It's almost as if I'm expecting that, whatever it is I'm doing, I'm doing for the last time.

Permit me to digress with a specific instance...

Back near the beginning of December, while Galina was still in New York, I happened to pass by a Goodwill store and stopped to hold the door for a customer that had just bought a used Christmas tree. As I watched the woman push the cart and the oversized box into the parking lot, I got to thinking about how, ever since the kids went out on their own, Galina and I have put up any Christmas decoration only sporadically, and not at all in recent years.

And it occurred to me that seeing some sort of tree in the house would be nice this year, even if it was a tree that had been used, used, used and teetered on its last legs as it did its job. I don't know what prompted that thought, maybe it was living alone in the house with only the animals for company while Galina was up north, maybe it was something else.

So I turned around, went into the store, found a suitable tree, and bought it. My first impression, upon opening the box at home, was that my whimsical specification—"used, used, used," etc.—had actually been fully satisfied, the tree was little more than a pile of junk, and the sum benefit of having bought it was the support I had shown for Goodwill Industries and the organization's work. Still, I set about assembling the tree, just to see what it was I had bought.

And it was while I was inserting the middle section of the tree into the bottom section that the thought crossed my mind—"What if this is the last Christmas tree I'm putting up?" And I stood there, for a moment, both aware of the question and resentful of the fact that it had occurred to me...

And then—bless that doggedly optimistic part of my mind—I realized that everyone could ask themselves the same question with equal validity, but it's pretty much only people like me, who are or have been made aware of their mortality, that ever get around to asking it. And not just about Christmas trees.

With that realization, I found it no task at all to put aside the question and to turn my full attention to being mindful of what I'm doing—bending the wire "boughs" to best advantage, noticing the texture of the plastic pine "needles," restringing the lights, and so on—which is what all of us should be doing anyway, no matter what our condition or activity.

And you know what? The question has all but stopped popping up in my head. Even better, once I got the tree assembled, it looked pretty good!

Cheers...
alexpgp: (Visa)
I am ready to gnaw off that part of my mind that must listen to the numbingly monotonous and annoying "hold" music that Blue Cross/Blue Shield of Texas (BCBSTX) is piping at me as I wait to speak with a so-called "customer advocate." Up to now, I've always considered the unfortunate incident back in the mid-1980s, at Disney World in Orlando, when Galina, the kids, and I were stuck inside the "It's a Small World" ride, listening to the ride's cloying theme music for almost an hour while technicians searched for a faulty limit switch, to be the most annoying "musical" interlude of my life. Not any more.

It's almost as if they want me to hang up.

The story so far today:

Despite my appeal for a waiver, BCBSTX has apparently rejected my new physician's referral to the doctor who has been treating me for the past year and is, in my humble opinion, best acquainted with my case. The next step, according to my new physician's office, is to gather medical records and appeal the rejection.

Tick, tock, tick, tock...

Yesterday afternoon, I left a message in my MD Anderson (MDA) patient account—the medical profession doesn't do email, dontchaknow—asking to have my records faxed to my new physician's office. MDA responds this morning with a phone number for an office they have that apparently does nothing but provide medical records. I call the number and determine there are two ways for doctors to request such records. I call my physician's office and relay the information.

Tick, tock, tick, tock...

My "former" physician (as classified by the insurer, not me) called yesterday and inter alia, recommended an oncologist, suggesting I find out if said doctor is "in-network." After several phone calls this morning, it turns out the answer is "no" (and my suspicion that BCBSTX will have me treated at "Bubba's Kancer Klinic and Sports Bar" became just a tad stronger).

Tick, tock, tick, tock...

I'm not quite sure why I'm the one trying to find a suitable place to get treated, but there it is. I'm almost 40 minutes into my current call to BCBSTX, and am idly wondering (as I type this) whether I should upgrade the minutes in my cellular plan, in anticipation of future attempts to extract information by phone from insurers and doctors.

Tick, tock, tick, tock...
alexpgp: (Visa)
A "medical day," as opposed to a sick day.

Today was Galina's turn in the barrel, so to speak, as she has been complaining lately about... well... further deponent saith not, as it's Galina and not myself that I'm blabbing about. I will note only that I came along to the doctor's to provide moral support, and that by the time we got home, the day was about shot.

I spent the morning on the phone, as documented earlier. In between waiting rooms in the afternoon, I had several additional phone conversations. If it weren't for the subject of the conversations, I might have believed myself to be one of those high-power, always-busy executives that are seemingly adored in popular culture as they make and lose fortunes. Alas, I was merely trying to make sense of intermingled worlds that have been, until recently, largely alien to me—those of medicine and insurance.

There will be some additional conversations along such lines tomorrow, and a meeting with my insurance agent, but the bottom line is that I'm going to have to hit the ground running as far as translations are concerned.

At a minimum.

Cheers...

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